Every March, we come together to shine a green light on Cerebral Palsy (CP), a condition that affects millions of people worldwide. Understanding cerebral palsy helps those without cerebral palsy relate to those who do have it. The month of March serves as an important reminder to increase awareness, promote inclusivity, and celebrate the incredible resilience of individuals living with CP. I have cerebral palsy, and every day I live my life as normally as possible. I’m a wife, mother, teacher and writer. Anything, within reason and perseverance, dreams are possible.
I have athetoid spastic cerebral palsy. I need a motorized wheelchair to be independent. My speech isn’t perfect, but it is understandable. Even when I believe that I am sitting still, I am moving. Whenever I hear a sudden noise, I jump. Due to my lack of mobility control, I do need assistance with dressing, being fed and other physical tasks. I can hug, dance, use my iPhone /iPad, teach, laugh, have friends, listen, give advice and make my own decisions. Cerebral palsy doesn’t take away your personality. You are still the same person with or without cerebral palsy. The way that you need to live life is just a bit different.
What is Cerebral Palsy?
Cerebral Palsy is a group of disorders that affect movement, muscle tone, and posture. It is caused by damage to the developing brain, often before or during birth, or in early infancy. My cerebral palsy occurred during my birth when I developed a lack of oxygen. CP manifests differently in each individual, ranging from mild to severe, and it can impact mobility, coordination, and even communication skills. Most of us with cerebral palsy have a normal or above average IQ. However, in some cases, the area of the brain that impacts intellect can be affected. Regardless, you always want to treat someone with a disabiluty with respect and dignity.
Cerebral palsy is not a disease or sickness. Actually, people with cerebral palsy use ten times the energy to do an ordinary task. No cure exists for cerebral palsy, but muscle relaxers and therapy helps cerebral palsy symptoms. My cerebral palsy is more manageable when I exercise or use muscle relaxers when I am having a hard time with spasticity. Cerebral palsy does not hurt per se but muscles can become tight and cause pain. I also feel pain when I’m sitting in my wheelchair too long. Keep in mind that I’ve had cerebral palsy my entire life so my muscles and bones have had a lot of use. I can still crawl and sit on the floor independently. These are tasks that therapists have been saying I would never be able to do past the age of 30.
Why Awareness Matters
Awareness is the first step toward understanding and acceptance. I have been educating people about cerebral palsy since I could speak, yet misconceptions are still present. Misconception about how to talk to someone with cerebral palsy or their quality of life. People who have cerebral palsy can understand, work, have relationships and children. Like anyone else, people with cerebral palsy are just people. Some have a great attitude, some lazy, some ambitious, some Republican and some Democrat. Just like anyone, no size fits all. The only thing different is people who have cerebral palsy have varying physical abilities.
Despite being one of the most common motor disabilities in childhood, Cerebral Palsy often remains misunderstood. Awareness campaigns during March aim to:
- Educate the public about CP and its impact on individuals and families.
- Advocate for better accessibility, healthcare, and support systems. Adult healthcare and support systems are not easily found after the age of 18.
- Highlight the achievements of those living with CP and their contributions to society. Many people have cerebral palsy. Some you might not even realize because it is so mild.
- Employ people who have cerebral palsy. People who have disabilities are often overlooked for employment. Give someone an opportunity.
- Include people who have cerebral palsy in social functions.
- Do not park in handicapped accessible parking spaces because people need them.
- When talking to someone with cerebral palsy, be patient and listen to them.
- Do not talk to people who have cerebral palsy do not speak to them like they are a baby or stupid. Talk to them with respect like you would anyone else.
- Contact places that are not acceptable to add ramps and access. These are things required by the ADA.
- If you see someone struggle, ask before you jump in and help. Do not assume someone needs help.
- Encourage children to ask questions and become friends with people who have disabilities.
Ways to Support Cerebral Palsy Awareness Month
There are many ways to get involved and make a difference during March:
- Wear Green: Green is the official color of CP awareness, symbolizing renewal and hope. Don your green attire and accessories to show your support.
- Share Stories: Use social media platforms to amplify the voices and stories of individuals with CP. Personal stories can inspire empathy and understanding.
- Donate: Consider contributing to organizations that support CP research, advocacy, and care services.
- Advocate for Accessibility: Promote inclusivity by advocating for accessible spaces, education, and employment opportunities for individuals with disabilities.
- Participate in Events: Join or organize local events, such as walks, fundraisers, or awareness campaigns, to foster a sense of community and solidarity.
Celebrating Strength and Resilience
Cerebral Palsy Awareness Month is not just about education; it’s also a celebration of the strength, determination, and achievements of those living with CP. They remind us that every individual has unique abilities and talents, and their stories inspire us to build a more inclusive and compassionate world. Cerebral palsy month reminds me of my abilities despite my physical challenges.
Looking Ahead
As we honor March as Cerebral Palsy Awareness Month, let us commit to creating a society where everyone, regardless of ability, has the opportunity to thrive. By spreading awareness, supporting advocacy efforts, and celebrating the resilience of individuals with CP, we take meaningful steps toward a brighter future for all.